Cure INAD: Leeds girl with rare condition 'deteriorating' as family raise cash to find a cure

Zoe Lightfoot was two years old when she was diagnosed with infantile neuroaxonal dystrophy (INAD) - a rare degenerative disease which causes loss of sight, physical movement and cognitive skills. Spotting that there was no UK-based charity where families could receive support, parents Christine Hamshere and Steven Lightfoot of Bramley decided to launch their own in 2021.

The charity celebrated its first anniversary on November 29 having raised enough money to give its first grant to University College London (UCL) and Great Ormond Street Hospital to fund its INAD research.